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Thalassaemia major is a genetic, blood disorder which affects
more than 1 lakh, children in the country. Children suffering from the disorder
cannot produce haemoglobin, which carries the oxygen that to be breath in , to the
various part of the body. These children are born with the disorder, and will survive
only if given regular blood transfusion.and , the transfusion need to be given every
15 days on an average, throughout there lives.
Repeated blood transfusions result in an undesirable build-up
of iron in the body, which can be fatal. The child has to take an injection every
day to dispose off this excess iron. This injection is given by a special infusion
pump, over a period of 8-10 hours every day. In most cases the injection is switched
on before the child goes to sleep and is removed the next morning and oral
drug has been developed for iron disposal which can replace the injection. This
drug is relatively affordable. But the drug does not work with some children.
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